This was the inspiration for our charity.
When I was in 5th grade, I met Michael. We sat near each other, he was in a wheel chair. We started to talk before class got started, and it seemed we were already best friends, even though we just met. As we talked I found out the he had MD, I didn’t know what that meant so he told me. For the rest of the day we spent free time together just talking and getting to know each other. After that we were best friends, and just bonded more and more every day.
For the rest the school year, we were always doing stuff together. If Michael needed help with something I was his second pair of hands. This is not to say that Michael was not able to do most things for himself, I was just assisting me if needed. This is how our friendship just blossomed into being able to know what the other was thinking.
My friendship with Michael is why when he passed away when we were freshmen in high school, I told myself that I would donate 1 million dollars to MD. It’s been 35 sense he passed away and I have not gone a day without remember him or stopped working towards that goal.
When I found out that I was going to be a dad, I told my wife that if we have a boy I wanted to name him Michael in honor of my best friend. This was the first thought of starting a charity, as the process has evolved I thought about the other things that have touched my life and that is why there are the rest of the causes within the charity organization.
My goal is to help others that have been affected with MD and share their stories along with doing what we can to find a cure. So if you know of someone that has in some way been touched by MD and willing to reach out to us we would love to talk and maybe high light you or them on our YouTube channel. Also if you are incline to be able or willing to donate we would greatly appreciate that.
Again, as our charity progresses, we want to be place for resources, regarding information about these causes and a way for people to show support and encouragement for everyone that has been touched by one or more of these causes. If you have or know someone that has been touched and affected by one of these causes, please let us know your story.
We also plan to spot light a different cause each month and share the story of a person or family from this cause, here on our website.
In a partnership with timewithmichaelandme youtube channel we plan to showcase a person or family from this cause as a way to high light them.
Also the timewithmichaelandme youtube channel will provide a way for kids to learn about (alphabet, number, colors, shapes, about space and planets, some fun experiments that you can try at home also, as well fun activities like Home Depot kids builds, playing with bubbles, to making a homemade wind chime, interacting with insects in our backyard, fun surprises and so much more).
We have also set up a GoFundMe page Michaelshares to assist us in raising money to get things going for our charity. If you can and are able to please help us to by donating, we would really appreciate that.
Here is some information regarding Muscular Dystrophy.
Muscular dystrophy is a group of diseases that cause progressive weakness and loss of muscle mass. In muscular dystrophy, abnormal genes (mutations) interfere with the production of proteins needed to form healthy muscle.
There are many different kinds of muscular dystrophy. Symptoms of the most common variety begin in childhood, mostly in boys. Other types don’t surface until adulthood.
There’s no cure for muscular dystrophy. But medications and therapy can help manage symptoms and slow the course of the disease.
Here is a link
to the MD Association
https://www.mda.org/
Thank you for taking the time to read about the reason for this cause.
When we make a donation it is personal to us and we would like to hear from people/families that have someone affected with this to be able to add their names to be honored when we make donations, along with being able to share their story.